New UCI Alzheimer’s Study

New UCI Alzheimer’s Study

UCI ResearchYesterday, I had the pleasure of hearing Dr. Steven G. Potkin speak about a new Alzheimer’s study to prevent Alzheimer’s at Angel Stadium of Anaheim. Wow, I hope this study is successful.

Dr. Potkin said that I could share all the information with you because he is currently seeking senior candidates who are 65 to 85 years of age (with normal memory) for this clinical study on Alzheimer’s disease (AD).

He is investigating a new drug intervention that may reduce the impact of a protein known as “amyloid” or “beta amyloid” forming plaques in the brain. Scientists believe that accumulation of amyloid in the brain may play a key role in the eventual development of AD-related memory loss.

Dr. Potkin is conducting the research study at the University of California Irvine (UCI) Medical Center in Orange, California. It is called the Anti-Amyloid Treatment in Asymptomatic Alzheimer’s study (the “A4” study for short) for seniors who may be at risk for memory loss due to AD.

A senior participant and his or her study partner need to be willing to be part of a three-year study. The study partner (must have frequent contact with the senior participant) would describe changes in the senior participant’s health to the study staff on a weekly basis.

There will be a PET scan at the initial screening meeting and at the conclusion of the three-year study to determine whether the senior participant has evidence of an elevated amyloid build-up. Senior participants will also receive monthly study drug infusions.

For more detailed information and the total compensation for completing the study, please contact Andrea Weideman with Dr. Steven G. Potkin’s Reseach Team at: 714-456-5697

My mother-in-law has Alzheimer’s and I pray this research can prevent future seniors from getting AD in the first place. Good luck to Dr. Potkin and the whole research team at UCI.

During my time with Dr. Potkin, he commended me for writing the book, “Your Senior Housing Options,” and said it is a much needed resource for seniors.  

Diane Masson advocated for her mom who had dementia for nine years and her mother-in-law currently lives in a memory care community. Diane writes a Tips2Seniors blog every week and published a book to take the guess work out selecting senior housing before, during or after a health care crisis, “Your Senior Housing Options.” She has worked in senior housing for 17 years and her first book, “Senior Housing Marketing – How to Increase Your Occupancy and Stay Full,” is helping senior housing professionals on a nationwide basis.

Seniors and Sales People Wearing Masks

Seniors and Sales People Wearing Masks

MaskAlmost everyone wears a mask out in public. It can be exhausting to hide behind a fake exterior and pretend we have it all together. I meet seniors and sales people everyday that seemed poised and polished to the world and yet they are terrified inside.

Many seniors and sales people have lost the ability to be real and authentic. They have worked hard to create the illusion that everything is fine, because they fear showing their vulnerability.  

Seniors walk into retirement communities everyday announcing that he or she is fine and “not ready yet” to make a move to senior housing. If you could pull off the mask, you might see a frightened senior who knows their memory is slipping, had a recent fender bender in the car or is just extremely lonely. That’s why they are exploring senior housing options.

Is this you?

Sale people may be dealing with an angry teenage daughter, a new baby, or ailing parents. They have to leave their breaking heart in the car and arrive for work with a mask of happiness. 

Is this you?

Here are the three most common masks:

The I’m Fine Mask: You smile and say that everything is fine when your heart is breaking. It appears that you have it all, but you may feel lost inside. It is safer to hide, because people expect it.

The Performance Mask: You have the “to do” list. You keep up a frantic pace.   If you stop performing then you are not worth anything at all. You want to matter and count.

The “I don’t care” Mask: You don’t bother with your looks. You do not seem to care. You are desperate to not be seen. You are certain that others will reject you.

Masks can be exhausting.  

I know because I am usually wearing the performance mask. On top of working full time as a regional marketing director at two Continuing Care Retirement Communities:

My personality has always been driven. I have always increased the occupancy of any senior living community I was working with. I love achieving goals. It’s also important to create balance in my life so I don’t burn out. I just started a women’s bible study called, “Keeping the Balance.” It is already changing my life and helping me recognize the real me, so I can be authentic with you. Today, I had some me time. What a treat. Tonight I will be dancing with my husband at Oktoberfest.

Balance in life is important. The opposite of wearing a mask can be seniors and sales people who over share. They want to dump all their problems on you and it may not be at an appropriate time.    

When my mom was in in later stages of dementia, her mask of pretending to be okay was gone. She just said whatever was on her mind.

How about you? What’s your mask? Have you found your balance?

Diane Masson has 19 years experience, both personally and professionally in senior housing.  She is an author of two books with 5-star ratings, a weekly blogger and a regional marketing director of two Continuing Care Retirement Communities.  Follow her newsletter on Tips2Seniors.com or Tips2Seniors on Facebook.

7 Deadly Sins of Searching for Senior Housing

Smart seniors plan ahead and research their options. Don’t get caught in a health care crisis. Once you are in crisis mode, your options may be limited. These seven deadly sins are a summation of my work with thousands of seniors during the course of my career.

Do you agree with these 7 deadly sins in the video?  Do they apply for home care, assisted living, memory care, skilled nursing and Continuing Care Retirement Communities?

 

Your Senior Housing Options,” has a simplistic title, but what’s inside this new book can save a you months of research time.  Hear Diane Masson’s interview of how her mother and in-law’s faced the pivotal decision to plan ahead or wait until a crisis.  Learn the pitfalls from transitioning from your home to senior housing.  Understand what questions to ask, insider tips and dirty secrets revealed. For weekly tips join at: Www.Tips2Seniors.com 

Diane Masson has worked in senior housing for 17 years and is the regional marketing director for two debt-free Continuing Care Retirement Communities in Southern CA (Freedom Village in Lake Forest and The Village in Hemet).  Her first book “Senior Housing Marketing – How to Increase Your Occupancy and Stay Full,” is being utilized by senior housing professionals across the country.  Both her first book and second book, “Your Senior Housing Options,” have a 5-star rating on Amazon.com.

Becoming Overly Dependent on a Caregiver

Becoming Overly Dependent on a Caregiver

IMG_6156A senior can easily become overly dependent on a caregiver. A helpless 92-year-old senior woman, who is recovering from a surgery, can suddenly become isolated in her own home and becomes reliant on her new around-the-clock caregiver.

In memory care communities, seniors with dementia rely on the loving support from their caregivers or fellow residents.   Joyful smiles, from a dementia resident, may only be reserved for those who see them daily. Sometimes a wife learns that her husband in memory care has decided to marry his “friend.” The “friend” might be a caregiver 50 years younger or another resident.

“Dear Abby,” recently published a letter from a man in his late 60’s. He wanted to marry a 28-year-old woman with three children. His question for “Dear Abby” was should he do it? She suggested a prenuptial agreement.

A frail senior man moved into a residential board and care home to recover from a hospitalization. His wife was optimistic about his ability to recover and return home. Her other wish was to have him improve enough to move into a Continuing Care Retirement Community with her. Unfortunately, the caregiver at the board and care home did everything for the husband. The wife begged for them to help her husband recuperate, by letting him dress himself, strengthen his legs by standing up, improve his endurance by walking around the home and etc. Instead the caregivers continued to make him 100% dependent on them, so he grew weaker and wheelchair bound. Now this couple (married for 60 years) will not be able to live together again.

Unlicensed home care workers (fly-by-night) can take over the finances of seniors while they sleep. This happened to one of my neighbors. She became a prisoner of her own home. The OC Register newspaper recently published an article about a senior who signed over her home to the caregiver who had lived with her for less than 90 days. She died with no children. The caregiver is still living in her home.

As humans we crave love and companionship. We need relationships in our lives. An isolated frail senior can easily become beholden to the one person who is sustaining their existence.

What have you seen or experienced?

Do you know a senior that is struggling?  Diane Masson’s new book can help walk you or them through, “Your Senior Housing Options.”  Diane has helped educate thousands of seniors in her career and shares weekly real life stories like this one.  Join her blog at Tips2Seniors.com or follow her on Facebook at Tips2Seniors.

Her first book “Senior Housing Marketing – How to Increase Your Occupancy and Stay Full,” has helped new and experienced senior housing professionals (assisted living, memory care, skilled nursing care and Continuing Care Retirement Communities) around the world.  Both her first book and second book, “Your Senior Housing Options,” have a 5-star rating on Amazon.com.

“My Mom Has Parkinson’s, How Do VA Benefits Work?”

“My Mom Has Parkinson’s, How Do VA Benefits Work?”

VA BenefitsMy seatmate flying up to Seattle shared that his mom can no longer prepare her own meals. She was diagnosed with Parkinson’s about one year ago. She is currently living in Washington State and can no longer drive. The local family needs to bring her meals to sustain her.

Is it fair to rely on your family to keep you at home?

The mom refused to move to California to live with one of her sons. He specifically bought a home with a “mother-in-law apartment” for her. But she did not want to leave her home or local friends.

Another adult child comes monthly to take her to doctor appointments. My seatmate, her son, visits her about every six months because he lives 1000 miles away.

The family is getting together from all over the country to celebrate her milestone birthday. They are going to discuss future care options, because she is not safe living alone.

I suggested he read my new book to help him with his dilemma.   He learned that the assisted living community under consideration is about $5,000 a month. He didn’t know that transitioning to skilled nursing care at some point could cost the family around $90,000 a year on a national basis. The family figured all the children could chip in to support mom to live in a higher level of care. So they want to check out her possible VA Benefits as the spouse of a deceased Veteran. So I shared with him that for VA Benefits to begin, three keys need to happen:

  1. The mom needs to spend down her assets.
  2. She will require a certain amount of care dictated by the VA. (These are called ADLS or activities of daily living. Such care includes: bathing, dressing, three meals a day, transportation assistance, medication management and etc.)
  3. She or her spouse will have needed to serve during one day of active war.

A Veteran gets about $2,000 a month and a spouse gets approximately half of that. The paperwork is complicated, so it is best to have someone who specializes in VA Benefits fill out the paperwork.

His mom still has a house to sell. Some assisted living communities who offer Medicaid require a senior to private pay for a year or two before needing Medicaid. So I suggested the family plan ahead now while she still has a house to sell. Then when she runs out of money, she could be at a community that will transition her onto Medicaid.

Some states like California do not offer Medicaid assistance to those needing assisted living. It is important to plan ahead now.

Any other suggestions for this family? What have you experienced? For more information on VA Benefits go to: http://www.benefits.va.gov/benefits/ Photo credit: http://www.benefits.va.gov/benefits/

Your Senior Housing Options,” has a simplistic title, but what’s inside this new book can save a you months of research time.  Hear Diane Masson’s interview of how her mother and in-law’s faced the pivotal decision to plan ahead or wait until a crisis.  Learn the pitfalls from transitioning from your home to senior housing.  Understand what questions to ask, insider tips and dirty secrets revealed.  The decision to stay home requires caregivers.  Prevent elder abuse by determining if a home care agency is reputable, before they move into your home.  You are just not looking for today’s needs, but for your future care.  Discover key differences between rental facilities vs Continuing Care Retirement Communities.  Do you have enough financial resources if you need to be in a higher level of care for an extended period of time?  For weekly tips join at: Www.Tips2Seniors.com 

Diane Masson has worked in senior housing for 17 years and is the regional marketing director for two debt-free Continuing Care Retirement Communities in Southern CA (Freedom Village in Lake Forest and The Village in Hemet).  Her first book “Senior Housing Marketing – How to Increase Your Occupancy and Stay Full,” is being utilized by senior housing professionals across the country.  Both her first book and second book, “Your Senior Housing Options,” have a 5-star rating on Amazon.com.

$48,000 a Month for my Father-in-law to Die?

$48,000 a Month for my Father-in-law to Die?

End of Life AdvocacyEnd of life decisions are so difficult for an advocate to make for his or her’s senior parent. A few months ago, I had to make tough choices for my mom before she passed. A month ago, my husband and his family faced difficult choices for his dad.

My father-in-law, Bill, had been on home hospice with 24/7 care for about three months. He was frail (worn out from being a caregiver for his wife who had Alzheimer’s), had inoperable blockages in his heart, had four small strokes that my sister-in-law witnessed and was frustrated with early dementia.

He was reaching for the cat when he fell.

The hospital determined that his pelvis was fractured in multiple locations and his femur (thigh bone) was broken. So Bill would be bed ridden the rest of his life. Sigh…he was in so much pain.

They were turning Bill every two hours to prevent bedsores. He could only be on his back and the side without the broken femur. He was a two-person transfer.

The fall that sent him to the hospital was a non-hospice related incident so it was covered by insurance. With no hope of improvement the hospital determined that he was once again comfort care. So according to the hospital, he was a hospice patent who needed to move out of the hospital or pay privately.

The only skilled nursing care facility in the area was not an option (bad reputation). There were no hospice facilities in the local area.

So the only two choices were:

  • Stay in the hospital for a cost of $48,000 a month.
  • Go home with two around-the-clock caregivers for a cost of $32,000 a month (because he was a two person transfer). The going home option would require my sister-in-law to stay home (she works full time) and manage the caregivers. The family would have to reimburse her normal salary.

My wonderful but exhausted sister-in-law found a temporary solution, which she badly needed. It is called hospice respite care, which includes a 5-day stay. Medicare Part A will pay for up to five days of respite care for a hospice patent who is otherwise cared for in the home. It gives a break to the caregiver. It can be provided in a hospice facility, nursing home or hospital. So we started the 5-day clock and didn’t have to move Bill. He was so frail and moving him would have been horrible painful. He died about three days later, pain free, with family at his side.

He worked hard his whole life and the family agreed upfront to pay the $48,000 a month after the respite 5-day stay.

What if a senior does not have this kind of money or a home to sell?

My own 92 year old mother died in skilled nursing care on Medi-cal. It was in a caring compassionate 5-star rated skilled nursing community called Freedom Village in Lake Forest, CA. My mom was lucky. Many skilled nursing facilities that offer Medicaid assistance are not wonderful experiences.

Families need to research choices, advocate and make the best end of life decisions possible at the time. 

Hospice Note:  Our family’s goal was for Bill to die at home.  My sister-in-law was fully prepared through hospice to make this happen.  Bill’s devastating fall that required a two person transfer changed the situation.  Just shifting him in his hospital bed was horribly painful.  We could not imagine moving him in a ambulance at this point to any another location.

This situation is still very raw for me and it has taken me over a month to be able to write about this topic in my blog.

Your Senior Housing Options,” has a simplistic title, but what’s inside this new book can save a you months of research time.  Hear Diane Masson’s interview of how her mother and in-law’s faced the pivotal decision to plan ahead or wait until a crisis.  Learn the pitfalls from transitioning from your home to senior housing.  Understand what questions to ask, insider tips and dirty secrets revealed.  The decision to stay home requires caregivers.  Prevent elder abuse by determining if a home care agency is reputable, before they move into your home.  You are just not looking for today’s needs, but for your future care.  Discover key differences between rental facilities vs Continuing Care Retirement Communities.  Do you have enough financial resources if you need to be in a higher level of care for an extended period of time?  For weekly tips join at: Www.Tips2Seniors.com 

Diane Masson has worked in senior housing for 17 years and is the regional marketing director for two debt-free Continuing Care Retirement Communities in Southern CA (Freedom Village in Lake Forest and The Village in Hemet).  Her first book “Senior Housing Marketing – How to Increase Your Occupancy and Stay Full,” is being utilized by senior housing professionals across the country.  Both her first book and second book, “Your Senior Housing Options,” have a 5-star rating on Amazon.com.