Do you know a senior(s) who has mild to moderate Alzheimer’s? This article will share what a clinical trial is testing and how far along in the Alzheimer’s disease a senior can be to remain eligible to participate. There are about 60 study sites located around metropolitan areas in the United States.
Nourish Ad clinical research study is testing an investigational treatment for Alzheimer’s disease and memory loss. “Investigational” means that this treatment is currently being tested and isn’t approved or available for use by the public. The investigational drug is called AC-1204. It is a double-blind study to improve thinking processes for people with Alzheimer’s disease. If a senior volunteers for this study, they either get the drug AC-1204 or not. Learn more about the company, the drug and eligibility for the trial HERE.
My mother-in-law, Amy, has Alzheimer’s and I hope we can figure out this disease in her lifetime.
I am not a doctor, but my simplified version of this trial is as follows: Seniors’ brains work on glucose. Seniors with Alzheimer’s brains do not process glucose normally. This trial will give a senior with Alzheimer’s a daily drink that provides an alternative energy source for the brain to improve memory.
A total of 480 seniors can qualify for this 6-month study. Senior participants must be 66 to 90 years old with mild to moderate Alzheimer’s or memory loss. The senior must have a permanent caregiver or family member participate in the study as well.
The study is designed to look at the safety and effectiveness of AC-1204. If a senior completes the first part of the study, he or she will have the option to continue AC-1204 for 6 more months at no additional cost.
There may be risks for participating in any clinical trial. Consider the risks and benefits before involving your loved one. Clinical studies are required by the FDA (Food and Drug Administration) prior to the release of a drug to the general public. Not all investigational drugs are approved by the FDA.
For managers/administrators of assisted living and memory care communities: If your community resides by one of the metropolitan study sites, a local doctor who is overseeing the research study could put on a presentation for your staff/caregivers or possible participants. Call Laura for more information at: 303.999.3742.
Diane Masson is a senior living expert who has authored two 5-star rated books. “Your Senior Housing Options,” empowers seniors to plan ahead and make their own decisions for the future, instead of waiting for a health care crisis and having family members put them someplace. The second book was written for senior living professionals called, “Senior Housing Marketing – How To Increase Your Occupancy and Stay Full.” Reach out to her through her website: Tips2Seniors.com and read the weekly blog.
How do you keep your mom or dad safe in a memory care community or assisted living? A retired cop moved into my mother-in-law’s memory care community and has been demonstrating sexual and violent aggression against her, other residents, and staff. This is what my family is facing now. Read about the incidents in, “Violence in Memory Care,” HERE.
This is a list of whom we have emphatically voiced our concerns:
Caregivers
The nurse
The Administrator
Two ombudsmen
The State of Washington (surveyors of licensed assisted living)
Adult Protective Services
Our family requested a care conference to discuss the safety of my mother-in-law, Amy. Two ombudsmen, the administrator, three adult children and myself attended it. It was the worst care conference that I have ever experienced in my 17 years working as a professional in senior living. On a personal level, I have attended numerous care conferences for nine years as an advocate for my own mother who had dementia. There is always a conclusion at the end of the care conference that provides some sense of hope for improving care or concerns.
Why was this care conference so bad?
The administrator would only talk about Amy. She refused to discuss Amy’s safety in regards to the aggressive cop, because of HIPPA. She refused to share any measures or policies that the staff was following for Amy’s safety. Are you kidding me? I specifically asked, “What are you doing to protect her?” She said that she could not answer that question and kept talking in circles.
The ombudsmen were no help either. They said they could only discuss Amy because we gave them permission to do so. They could not discuss any other residents or the aggressive retired cop because they had not been given permission to do so. Nobody would address the elephant in the room, which was an aggressive retired cop with dementia preying on vulnerable residents.
What about Amy’s safety? What about the other residents’ safety?
The state did a surprise visit to the memory care community last week and said there are no new violations. This community is in a rural part of Washington State. There is not another community in the local area.
Any advice from senior living professionals? What else can we do?
Tip: For adult children looking for memory care or assisted living. Interview the administrator, before you move your parent into the community. Find out how long they have worked there. We did this and the answer was two years. Life was good for Amy until this experienced administrator moved on.
Diane Masson is a senior living expert who has authored two 5-star rated books. Her new book is an all-encompassing answer guide for seniors called, “Your Senior Housing Options,” designed to help seniors navigate choices quickly. The second book was written for senior living professionals called, “Senior Housing Marketing – How To Increase Your Occupancy and Stay Full.” Reach out to her through her website: Tips2Seniors.com and read the weekly blog.
Did you share a holiday dinner with a struggling senior? Have the basics become difficult for your senior parent? Is there a little dementia? Learn how to have “The Talk,” with a senior from author Diane Masson.
Happy holidays from Diane Masson and Tips2Seniors.com
A former cop moved into my mother-in-law’s memory care community. He was doing simulated punches to people including the administrator. The administrator was worried the punches might become real, because seniors with dementia do not have good depth perception. Then my sister-in-law witnessed him doing it to my mother-in-law, Amy. She was horrified.
My sister-in-law was sitting across from her mom. The former cop came up from behind my sister-in-law and then she saw a fist heading for Amy’s face. The fist stopped six inches away. Here is the weird part. A caregiver witnessed the whole thing, but showed no concern, never said a word, or redirected him. He did walk away and the caregiver accompanied him down the hall. My sister-in-law shouted, “That was not cool,” after them.
So the staff started locking residents’ rooms because they caught the former cop standing over sleeping residents. The doors were locked at night so residents could still wander out, but he could not wander in.
Something combative must have happened between the former cop and a staff person. They would not say what but my sister-in-law observed that he was gone over a day and then came back drugged. All these situations have transpired over two weeks.
My sister-in-law is very worried about Amy. What if she gets up in the night and leaves her room? What if the former cop is out too? Amy will have nowhere to go because every door is locked. A few days ago my sister-in-law discovered the doors to the residents rooms were locked during the day. She shared her disapproval with the administrator. The administrator said it was because both residents were asleep in the room (which they were doing at the time). My sister-in-law said to the administrator, “You said you would only lock the doors at night.”
Who is protecting the residents? The community says they cannot provide one-on-one care for the former cop. They say he has rights too and just can’t make him leave. If another violent incident happens he will be thrown in jail because there is a 49-day wait for a geripsych hospital.
One caregiver shared that the former cop pointed to himself and then her. Then he made gestures of sexual intercourse. He tried to grab her behind, but she wouldn’t let him. Other caregivers do let him grab their behinds and laugh. This is very concerning to our family, because how can someone with dementia distinguish who is a caregiver and who is a resident? He should always be redirected on proper behavior. He is not. There is no redirecting consistency with the caregiving staff.
When my sister-in-law shared the above examples with the administrator she said, “The caregivers are burned out and fearful of him. I am glad you told me and I will talk to staff about consistency.”
The family called the omsbudman and the state. The state triggered a call back to the family from adult protective services. They wanted to know if Amy was afraid. The answer was yes!
Recently, Amy was watching the fish swim in the 100-gallon tank. The former cop came up behind her and grabbed both of her arms. She screamed. My sister-in-law heard the story from a caregiver. Here was Amy’s interpretation to her daughter: Amy said, “A drunk guy grabbed me and tried to beat me up.” She pointed to the former cop and said, “There is that bad man, I don’t like him.”
Is the facility doing all that they can and should? Should this guy be gone? How much violence is okay in a licensed assisted living community in Washington State?
Any answers would be much appreciated.
Diane Masson is a senior living expert who has authored two 5-star rated books. Her new book is an all-encompassing answer guide for seniors called, “Your Senior Housing Options,” designed to help seniors navigate choices quickly. The second book was written for senior living professionals called, “Senior Housing Marketing – How To Increase Your Occupancy and Stay Full.” Reach out to her through her website: Tips2Seniors.com and read the weekly blog.
Around 12.9% percent of seniors live in poverty in this nation. They can’t ever enjoy a nice retirement or assisted living community with services! It broke my heart to participate in a health fair at a senior center in Riverside, California a week ago. About a 1000 seniors attended.
Most seniors were looking for Section 8 or HUD Housing retirement options. What are these options? It’s renting an apartment based on a percentage of their income or a flat fee. It is simply an apartment building that houses seniors. The senior will most likely not have onsite services and support as they age and dementia begins.
Subsidized senior housing typically does not offer meals, entertainment, wellness classes, transportation to medical appointments or pay for a senior’s cable TV.
It’s disheartening to know that American seniors will be pushed aside to fend for themselves. Why is America trying to save the world and can’t take care of our own seniors? In many states, low-income seniors have no way to afford assisted living. Sure we have Medicaid and Medical when a senior becomes almost completely incapacitated and needs skilled nursing care.
What about that in-between step when a senior needs support either physically, mentally, nutritionally or is lost in dementia? What about that intermediate stage when it has become too difficult to grocery shop or cook for themselves. What about when a senior’s arthritic fingers can’t open a jar or button a blouse? Maybe they can rely on family, friends or neighbors? What if they need help at 7:00 AM or in the middle of the night? What if they don’t ask for help?
I spoke with seniors at the health fair who lived with their adult children. Other seniors had grandchildren depending on them for support. Finally, several seniors had adult daughters caring for them. I asked one frail couple, “What is your plan for your future health care?” They told me that their daughter will take care of them. I asked, “What happens when your care becomes more than your daughter can handle?” (I really wanted to ask if they were willing for their daughter to toilet them at some point.) They were sweetly oblivious to my inquiry and said that she would be able to handle it.
We have a crisis in this country. What can we do about it? Many seniors are living below the national poverty line. They can’t afford to bring in home care, nor can they afford senior housing. Meals-on-Wheels is a wonderful resource, but seniors have to be willing to ask for help.
What are your thoughts on this subject?
Diane Masson is a sought after author, blogger, speaker and regional marketing director. She is very passionate about advocating for seniors on a nationwide basis and educating them about their future choices. She just published a book to help seniors take the guess work out of selecting senior housing options or staying home. It is called, “Your Senior Housing Options.” Her other book has been popular with senior housing professionals on a nationwide basis. It is called, “Senior Housing Marketing – How to Increase Your Occupancy and Stay Full.” You can contact her through her website at tips2seniors.com.
Smart seniors plan ahead and research their options. Don’t get caught in a health care crisis. Once you are in crisis mode, your options may be limited. These seven deadly sins are a summation of my work with thousands of seniors during the course of my career.
Do you agree with these 7 deadly sins in the video? Do they apply for home care, assisted living, memory care, skilled nursing and Continuing Care Retirement Communities?
Your Senior Housing Options,”has a simplistic title, but what’s inside this new book can save a you months of research time. Hear Diane Masson’s interviewof how her mother and in-law’s faced the pivotal decision to plan ahead or wait until a crisis. Learn the pitfalls from transitioning from your home to senior housing. Understand what questions to ask, insider tips and dirty secrets revealed. For weekly tips join at: Www.Tips2Seniors.com
Diane Masson has worked in senior housing for 17 years and is the regional marketing director for two debt-free Continuing Care Retirement Communities in Southern CA (Freedom Village in Lake Forest and The Village in Hemet). Her first book “Senior Housing Marketing – How to Increase Your Occupancy and Stay Full,” is being utilized by senior housing professionals across the country. Both her first book and second book, “Your Senior Housing Options,” have a 5-star rating on Amazon.com.
Do you know a senior(s) who has mild to moderate Alzheimer’s? This article will share what a clinical trial is testing and how far along in the Alzheimer’s disease a senior can be to remain eligible to participate. There are about 60 study sites located around metropolitan areas in the United States. 
